diagnosis and misdiagnosis

child trying to climb higher

When the Answers Are Just Out of Reach

The caller, named Barbara, was in tears, and at first it was difficult to understand what she needed – what she hoped I could help with. “I have no voice! They don’t hear me!” Barbara repeated that phrase several times – meaning – I could clearly hear her, so her statement made no sense to …

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It’s Time. And It’s Imperative.

For most of us, it’s been about 14 months since life came to a halt and we began our pandemic distancing and avoiding. For those who actually distanced and avoided appropriately, I say – well done! You did what you could to avoid not only getting sick with COVID yourself, but you helped keep others …

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scolding doctor

Don’t Let Medical Professionals Make You Feel Guilty

A recent post on social media caught my eye…. My husband was very clear. He didn’t want his life prolonged. But they guilted me into it! So I told them to go ahead and put him on a ventilator… I wish I hadn’t done that. I will always feel guilty. And, a comment from an …

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man with a headache

Gaslighting: When Your Doctor Tells You It’s All in Your Head

Jessie has trouble describing the pain in her stomach. It comes and goes. Sometimes it’s a stabbing pain, and sometimes its just dull. Sometimes it takes her breath away. She wants to know what causes the pain, and what can be done about it. She’s frightened; afraid it could be life threatening. She wants an …

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woman with boxing gloves

Getting Revenge in the Face of Malpractice

Sometimes when patients or caregivers do a search in the AdvoConnection Directory for an advocate to help them, they are unable to find someone. There are a number of reasons for that, such as believing an advocate needs to be local (she may not) or not finding someone who the searcher thinks has the skill …

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camcer patient in radiation during covid-19

Cancer and COVID-19: A Guide

With thanks to advocate and guest blogger, Claire Thevenot. Find Claire’s advocacy profile here: Clarity Patient Advocates “COVID cancer sucks,” my client said.  She discovered a cancerous lump in her breast a couple of weeks ago and has had to go through the many initial appointments amid the chaos, isolation, and uncertainty of COVID-19. As …

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telehealth

“Invisible Patients” and the COVID Pandemic

With thanks to advocate and guest blogger, Karen Leitson. Find Karen’s advocacy profile here: Personalized Healthcare Advocate Do you or does someone in your family have an unattended medical condition or illness that might be taking a back seat to the coronavirus public health crisis? There is never a “good time” to be sick or …

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Understanding Coronovirus / COVID-19 Testing

With thanks to advocate and guest blogger, Angie Galatas. Find Angie’s advocacy profile here: Medical Advocacy Plus, LLC Antigen, antibody, viral, serology, these are intimidating words that show up in news articles, media, and insurance documents related to COVID-19. The pandemic has led us to become investigators of not only the virus, but the medical …

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cyberchondria

Cyberchondria – Are we Putting Too Much Faith in Dr. Google?

You may be reading this post because you are curious about that term – “cyberchondria.”  It’s not hard to figure out what it means. It means hypochondriac-ism as a result of doing online searches. More precisely, the act of diagnosing ourselves by using the web, then upsetting ourselves through our findings. It’s when we decide …

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Infusion pump feeding IV drip into patients arm focus on needle

When Your Provider Says, “It’s All in Your Head”

In a recent conversation with Annette, a young woman who has MS (multiple sclerosis), she described to me the first time she went for a drug infusion which had been prescribed by her neurologist. She arrived for the session using her walker, barely able to keep her balance. Exhausted, she was finally able to get …

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