medical decision making – The AdvoConnection Directory of Private, Independent, Professional Patient Advocates

When Your Provider Says, “It’s All in Your Head”

In a recent conversation with Annette, a young woman who has MS (multiple sclerosis), she described to me the first time she went for a drug infusion which had been prescribed by her neurologist.

She arrived for the session using her walker, barely able to keep her balance. Exhausted, she was finally able to get comfortable in the infusion chair. As the nurse began setting up the needle and catheter injection system into her vein, she looked at Annette and asked ...

Continue Reading →

17
OCT

0

diagnosis and misdiagnosis, doctor communication, health care and cost management, medical decision making, working with advocates and care managers

The Surgical Assembly Line

Posted by: AdvoConnection

When I think of an assembly line, two images pop into my head:

The I Love Lucy Chocolate Factory episode where Lucy and Ethel are trying to wrap chocolates (and eat them too!) and can’t possibly keep up.
My high school history class, when we learned about Henry Ford’s invention of the concept of an assembly line, where hundreds of cars were being assembled in one day. It revolutionized manufacturing, helping companies produce much more than ever before.

I thought of both when ...

Continue Reading →

19
AUG

0

doctor communication, follow the money, hospital care, medical decision making, patient communication, patient safety, working with advocates and care managers

surgery

Treat Your Human Body Like You Treat Your Car

Posted by: AdvoConnection

My friend Janet has a bad wound on her leg. It has been there for two months, and just looks worse and worse. Now it looks so bad she doesn’t even want to leave the house.

“What does your doctor say about it?” I asked her.

“I’ve been back to him five times!”, she responded. “He keeps giving me antibiotics, but it doesn’t seem to get any better.”

“Five times???” I asked her, incredulously.

It was time for “the talk” with Janet.

… the talk ...

Continue Reading →

21
JUL

1

diagnosis and misdiagnosis, doctor communication, medical decision making, working with advocates and care managers

Busting the Cure Balloon and Finding a Workable Solution

Posted by: AdvoConnection

“The cure cannot come soon enough.”

As someone who works in healthcare, and who speaks to patients and their loved ones every day, this is a statement I hear frequently. Whether we’re talking about someone’s cancer diagnosis, or Alzheimer’s Disease, or ALS, or MS, or diabetes… it seems to be everyone’s hope – that a cure is on the horizon.

When my father was alive, and in his 24th year after his prostate cancer diagnosis, he lamented the fact that he had ...

Continue Reading →

24
JUN

1

diagnosis and misdiagnosis, follow the money, health care and cost management, medical decision making

Ac-cen-tu-ate – the Negative?

Posted by: AdvoConnection

It’s time to take a trip with the Way-Back Machine to a song many of us heard when we were kids – because our parents played it on the radio or record player. We all sang along!

With lyrics by Johnny Mercer, and sung by Ella Fitzgerald (that’s Ella in the photo above), the song “Ac-cen-tu-ate the Positive” became popular in the mid-1940s, with its very (yes) positive message of how we should focus our lives.. on ...

Continue Reading →

30
MAY

0

diagnosis and misdiagnosis, doctor communication, follow the money, medical decision making, patient communication

“When I’m Sixty-Four” and If I’m Alone….

Posted by: AdvoConnection

Back in 2004, I was between husbands, and in my early 50s. As silly as that may sound (“between husbands”), the truth was, I spent 18 years with that status, between divorce and remarriage… and I was alone.

“Alone” is the key to today’s post.

Back in 2004, I was also diagnosed with a rare and terminal lymphoma. Yes – terminal – and yet here I am writing about it in 2019. You can read the story in ...

Continue Reading →

25
MAR

0

eldercare, health care and cost management, medical decision making, patient communication, types of patient advocates, working with advocates and care managers

The Folly of Driving to the ER

Posted by: AdvoConnection

Hugh, a gentleman of about 68 years, lived alone. Hugh wasn’t feeling well. It was just a general feeling that something – who knows what? – just wasn’t right.

After a short while, Hugh walked over to see Phil, his next door neighbor. Phil agreed to drive Hugh to the Emergency Room.

It took them about 30 minutes to get there. Hugh signed in, and together he and Phil sat down in the waiting room. Within 15 minutes, Hugh keeled over, out ...

Continue Reading →

12
SEP

2

diagnosis and misdiagnosis, hospital care, medical decision making, patient communication, patient safety

Black Box Warnings May Save Your Life

Posted by: AdvoConnection

This often comes as a major surprise for patients: that when a prescription drug is known to be effective, and is approved by the FDA for some patients, that doesn’t mean it’s effective and safe for all patients.

It’s true that some people may be allergic, or the drug might have been prescribed to treat the wrong diagnosis, or the patient may not take the drug properly and over (or under) dose….

…But those situations are not what I’m addressing in this ...

Continue Reading →

23
FEB

0

doctor communication, follow the money, health care and cost management, medical decision making, patient safety, the government and health care

FDA black box

No Diagnosis? It May Not Matter

Posted by: AdvoConnection

Years ago I watched a movie called Serendipity. It starred Kate Beckinsale and John Cusack. It was a “romcom” – and adorable – and it occurs to me that it sets the stage for today’s post.

The story was about two young people who met in Bloomingdales while shopping, and through a series of events, they were attracted to each other, but never exchanged names. They then lost track of each other. Over the years they continued to ...

Continue Reading →

23
JAN

0

diagnosis and misdiagnosis, follow the money, health care and cost management, medical bills, medical decision making, patient safety

OK, But What’s the Question?

Posted by: AdvoConnection

In my previous life as a speaker and writer on patient empowerment issues, I received email, even postal mail (meaning, yes, someone paid for a stamp!) from patients who were being challenged in some way by the healthcare system. Sometimes I would hear from 8 or 10 people in a week, 25, 30 or more a month.

Their stories were often sickening and terrifying. At the least they were frustrating to read (even more so to live through, I’m sure) and ...

Continue Reading →

19
OCT

0

doctor communication, health care and cost management, medical decision making, patient communication

manage expectations