patient communication

Don’t Let Medical Professionals Make You Feel Guilty

scolding doctor

A recent post on social media caught my eye…. My husband was very clear. He didn’t want his life prolonged. But they guilted me into it! So I told them to go ahead and put him on a ventilator… I wish I hadn’t done that. I will always feel guilty. And, a comment from an email a few months ago…. They told me the only thing they could do was amputate my mother’s foot because …

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Gaslighting: When Your Doctor Tells You It’s All in Your Head

man with a headache

Jessie has trouble describing the pain in her stomach. It comes and goes. Sometimes it’s a stabbing pain, and sometimes its just dull. Sometimes it takes her breath away. She wants to know what causes the pain, and what can be done about it. She’s frightened; afraid it could be life threatening. She wants an accurate diagnosis. Jeremy suffers from headaches, sometimes 4 or 5 times a week. He has been unable to figure out …

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Getting Revenge in the Face of Malpractice

woman with boxing gloves

Sometimes when patients or caregivers do a search in the AdvoConnection Directory for an advocate to help them, they are unable to find someone. There are a number of reasons for that, such as believing an advocate needs to be local (she may not) or not finding someone who the searcher thinks has the skill set to help… When searchers can’t find someone, they are invited to post a request for their “unmet needs”. We, …

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Aging and Alone? Who Will Hold Your Hand Through Healthcare Challenges?

There are terms used to describe those who are aging and alone. “Elder Orphans” is one. “Solo Seniors” is another. Both describe the concept of someone who is older and has no family or younger friends to help out in time of medical crisis (or, for that matter, any other life-assisting event like moving, or shifting financial needs.) If these terms describe you, then you may be asking yourself questions like:

“Invisible Patients” and the COVID Pandemic

telehealth

With thanks to advocate and guest blogger, Karen Leitson. Find Karen’s advocacy profile here: Personalized Healthcare Advocate Do you or does someone in your family have an unattended medical condition or illness that might be taking a back seat to the coronavirus public health crisis? There is never a “good time” to be sick or to have an ill family member, loved one or friend. But now, during this period of the Covid-19 pandemic, is …

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Taking Control in the Midst of a Pandemic

take control during a pandemic

With thanks to advocate and guest blogger, Barbara O’Halloran. Find Barbara’s advocacy profile here: ABC for Your Health, LLC When life is turned inside out and upside down… COVID19 has impacted every aspect of our lives! It has wreaked havoc and created a great deal of uncertainty for everyone; from kids who are out of school, to parents working from home, to adult children unable to visit with their parents, to the elderly population who …

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Understanding Coronovirus / COVID-19 Testing

With thanks to advocate and guest blogger, Angie Galatas. Find Angie’s advocacy profile here: Medical Advocacy Plus, LLC Antigen, antibody, viral, serology, these are intimidating words that show up in news articles, media, and insurance documents related to COVID-19. The pandemic has led us to become investigators of not only the virus, but the medical terminology associated with it. Many people are suffering from fear, uncertainty, and exhaustion, trying to decode the information, and this …

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Rehab or Skilled Nursing – How to Manage Your Loved One’s Care Remotely

senior hands

With thanks to advocate and guest blogger, Cheryl Scharoun. Find Cheryl’s advocacy profile here: Baby Boom Health Do you have a loved one in a Rehabilitation or Skilled Nursing Facility? If you do, I am sure you have several emotions going through your head. These are scary times to say the least. Guilt, isolation, uncertainty, fear, and feeling helpless are just a few. You can’t visit, so how do you manage that anxiety? Have you …

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Prepare for the Hospital – A Checklist for Use During the COVID-19 Pandemic

woman hospitalized for COVID

With thanks to advocate and guest blogger, Kim McIlnay.  Find Kim’s advocacy profile here: Together Patient Advocates, LLC Under the best of circumstances, a hospital stay is stressful and uncomfortable. New challenges with the current COVID pandemic make this a time fraught with even more worry, uncertainty and isolation. But there are still many things you can do to prepare. I’m hopeful that these brief tips can help you prepare now for an improved hospitalization …

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An “Advance” New Year’s Resolution

notebook

Happy 2020 to you, my “patient” readers. I wish you much good health and happiness and importantly, peace-of-mind in this new year. OK – yes – it’s mid-January, so it might be a wee-bit late to be listing our resolutions for the year, but that doesn’t make this piece of advice any less important. I want to share something with you that has brought ME some huge peace of mind. And I’m going to challenge …

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