working with advocates and care managers

When the Answers Are Just Out of Reach

child trying to climb higher

The caller, named Barbara, was in tears, and at first it was difficult to understand what she needed – what she hoped I could help with. “I have no voice! They don’t hear me!” Barbara repeated that phrase several times – meaning – I could clearly hear her, so her statement made no sense to me. At least, it made no sense until I asked her what she was trying to voice – what could …

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Don’t Let Medical Professionals Make You Feel Guilty

scolding doctor

A recent post on social media caught my eye…. My husband was very clear. He didn’t want his life prolonged. But they guilted me into it! So I told them to go ahead and put him on a ventilator… I wish I hadn’t done that. I will always feel guilty. And, a comment from an email a few months ago…. They told me the only thing they could do was amputate my mother’s foot because …

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Aging and Alone? Who Will Hold Your Hand Through Healthcare Challenges?

There are terms used to describe those who are aging and alone. “Elder Orphans” is one. “Solo Seniors” is another. Both describe the concept of someone who is older and has no family or younger friends to help out in time of medical crisis (or, for that matter, any other life-assisting event like moving, or shifting financial needs.) If these terms describe you, then you may be asking yourself questions like:

Cancer and COVID-19: A Guide

camcer patient in radiation during covid-19

With thanks to advocate and guest blogger, Claire Thevenot. Find Claire’s advocacy profile here: Clarity Patient Advocates “COVID cancer sucks,” my client said.  She discovered a cancerous lump in her breast a couple of weeks ago and has had to go through the many initial appointments amid the chaos, isolation, and uncertainty of COVID-19. As if a cancer diagnosis isn’t daunting enough, dealing with cancer in a pandemic setting is especially frightening and challenging. If …

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“Invisible Patients” and the COVID Pandemic


With thanks to advocate and guest blogger, Karen Leitson. Find Karen’s advocacy profile here: Personalized Healthcare Advocate Do you or does someone in your family have an unattended medical condition or illness that might be taking a back seat to the coronavirus public health crisis? There is never a “good time” to be sick or to have an ill family member, loved one or friend. But now, during this period of the Covid-19 pandemic, is …

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Taking Control in the Midst of a Pandemic

take control during a pandemic

With thanks to advocate and guest blogger, Barbara O’Halloran. Find Barbara’s advocacy profile here: ABC for Your Health, LLC When life is turned inside out and upside down… COVID19 has impacted every aspect of our lives! It has wreaked havoc and created a great deal of uncertainty for everyone; from kids who are out of school, to parents working from home, to adult children unable to visit with their parents, to the elderly population who …

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Understanding Coronovirus / COVID-19 Testing

With thanks to advocate and guest blogger, Angie Galatas. Find Angie’s advocacy profile here: Medical Advocacy Plus, LLC Antigen, antibody, viral, serology, these are intimidating words that show up in news articles, media, and insurance documents related to COVID-19. The pandemic has led us to become investigators of not only the virus, but the medical terminology associated with it. Many people are suffering from fear, uncertainty, and exhaustion, trying to decode the information, and this …

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When Your Provider Says, “It’s All in Your Head”

Infusion pump feeding IV drip into patients arm focus on needle

In a recent conversation with Annette, a young woman who has MS (multiple sclerosis), she described to me the first time she went for a drug infusion which had been prescribed by her neurologist. She arrived for the session using her walker, barely able to keep her balance. Exhausted, she was finally able to get comfortable in the infusion chair. As the nurse began setting up the needle and catheter injection system into her vein, …

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The Surgical Assembly Line

When I think of an assembly line, two images pop into my head: The I Love Lucy Chocolate Factory episode where Lucy and Ethel are trying to wrap chocolates (and eat them too!) and can’t possibly keep up. My high school history class, when we learned about Henry Ford’s invention of the concept of an assembly line, where hundreds of cars were being assembled in one day. It revolutionized manufacturing, helping companies produce much more …

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Treat Your Human Body Like You Treat Your Car

leg wound

My friend Janet has a bad wound on her leg. It has been there for two months, and just looks worse and worse. Now it looks so bad she doesn’t even want to leave the house. “What does your doctor say about it?” I asked her. “I’ve been back to him five times!”, she responded. “He keeps giving me antibiotics, but it doesn’t seem to get any better.” “Five times???” I asked her, incredulously. It …

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