working with advocates and care managers

child trying to climb higher

When the Answers Are Just Out of Reach

The caller, named Barbara, was in tears, and at first it was difficult to understand what she needed – what she hoped I could help with. “I have no voice! They don’t hear me!” Barbara repeated that phrase several times – meaning – I could clearly hear her, so her statement made no sense to …

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scolding doctor

Don’t Let Medical Professionals Make You Feel Guilty

A recent post on social media caught my eye…. My husband was very clear. He didn’t want his life prolonged. But they guilted me into it! So I told them to go ahead and put him on a ventilator… I wish I hadn’t done that. I will always feel guilty. And, a comment from an …

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Aging and Alone? Who Will Hold Your Hand Through Healthcare Challenges?

There are terms used to describe those who are aging and alone. “Elder Orphans” is one. “Solo Seniors” is another. Both describe the concept of someone who is older and has no family or younger friends to help out in time of medical crisis (or, for that matter, any other life-assisting event like moving, or …

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camcer patient in radiation during covid-19

Cancer and COVID-19: A Guide

With thanks to advocate and guest blogger, Claire Thevenot. Find Claire’s advocacy profile here: Clarity Patient Advocates “COVID cancer sucks,” my client said.  She discovered a cancerous lump in her breast a couple of weeks ago and has had to go through the many initial appointments amid the chaos, isolation, and uncertainty of COVID-19. As …

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telehealth

“Invisible Patients” and the COVID Pandemic

With thanks to advocate and guest blogger, Karen Leitson. Find Karen’s advocacy profile here: Personalized Healthcare Advocate Do you or does someone in your family have an unattended medical condition or illness that might be taking a back seat to the coronavirus public health crisis? There is never a “good time” to be sick or …

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take control during a pandemic

Taking Control in the Midst of a Pandemic

With thanks to advocate and guest blogger, Barbara O’Halloran. Find Barbara’s advocacy profile here: ABC for Your Health, LLC When life is turned inside out and upside down… COVID19 has impacted every aspect of our lives! It has wreaked havoc and created a great deal of uncertainty for everyone; from kids who are out of …

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Understanding Coronovirus / COVID-19 Testing

With thanks to advocate and guest blogger, Angie Galatas. Find Angie’s advocacy profile here: Medical Advocacy Plus, LLC Antigen, antibody, viral, serology, these are intimidating words that show up in news articles, media, and insurance documents related to COVID-19. The pandemic has led us to become investigators of not only the virus, but the medical …

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Infusion pump feeding IV drip into patients arm focus on needle

When Your Provider Says, “It’s All in Your Head”

In a recent conversation with Annette, a young woman who has MS (multiple sclerosis), she described to me the first time she went for a drug infusion which had been prescribed by her neurologist. She arrived for the session using her walker, barely able to keep her balance. Exhausted, she was finally able to get …

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The Surgical Assembly Line

When I think of an assembly line, two images pop into my head: The I Love Lucy Chocolate Factory episode where Lucy and Ethel are trying to wrap chocolates (and eat them too!) and can’t possibly keep up. My high school history class, when we learned about Henry Ford’s invention of the concept of an …

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leg wound

Treat Your Human Body Like You Treat Your Car

My friend Janet has a bad wound on her leg. It has been there for two months, and just looks worse and worse. Now it looks so bad she doesn’t even want to leave the house. “What does your doctor say about it?” I asked her. “I’ve been back to him five times!”, she responded. …

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